GeneralHr Library

17 Things I Wish I Had Done Before I Became Chronically Ill

Source | LinkedIn :  By Hilary Lauren

Since the onset of my illness, I have doled out advice to strangers. Middle-agers who are seemingly healthy, the banker, the drugstore cashier, people standing in line. “Buy disability insurance,” I announce as if onlookers are interested.

I have lived the hell of transverse myelitis for two years now, and so it seems right to give healthy people a few tips… things I wish I had done when I, too, thought I was untouchable.

1. Attend every social event. After symptoms set in and you are sitting in bed, you will wish you could crash that party! If you have the energy, go. Support your friends and family. Be in the moment. People will embrace you… when you get sick and re-re-re-schedule plans, some won’t stick around.

2. Plot your new work fate. You, striding around the office, engaging and smiling until the record skips. When you become unable to sit upright you’ll wish for time to rewind so you can consider, without pressure, your new work life with chronic illness.

3. Be physically active. You likely have a body not plagued by nerve misfirings and random, nonsensical betrayals. Take care of it! Do it for the patients who can’t do it for themselves! Be fearless on that mountain bike, park in the last row. Hunt for tarantulas like I did one summer! Become the best version of yourself.

4. Purchase a disability insurance plan. I mean it. Right now. Put this article down and take a moment to set up the required $35 or so monthly payment. When you get sick you will never regret it.

5. Pay down on bills. Your car, credit cards — make deals and settlements (if you need to). Plot your finances. Build your savings. Two hundred dollars may mean making the bills… or not.

6. Don’t burn bridges. You never know who you’ll have to call. So, get comfortable calling. You are not demeaned because you need a hand with household chores. You are a person requiring assistance. No one can make you feel bad about it… but you. Embrace this way of thinking. It’s vulnerable and powerful!

7. Get honest about your relationships. When you move from an I’ll-figure-it-out-myself-conquer-the-world stance to I-might-never-be-fun-again, you better get right with your significant other. Tell yourself you are worth it. That you seeking help is no different than anyone else. Similarly, recognize taking care of another requires dedication, empathy and compassion. Give your support system kindness… and a break.

8. Travel whenever, wherever. Hotel getaways, last-minute airline deals. Go! Now! Make memories in foreign locations, take pictures, hold onto moments. After you are sick, days and nights may blend together and turn into year-round cabin fever.

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